RP Fighting Blindness
RP Fighting Blindness: funding cutting edge research programmes and providing patient support for those with retinitis pigmentosa
RP Fighting Blindness was founded in 1975 by people with retinitis pigmentosa (RP). The group was concerned about the lack of knowledge surrounding the disease within the medical profession, the absence of a treatment or cure, and the poor support available for people with RP.
RP affects approximately one in every 3,000 to 4,000 people, making it a significant condition. Originally called The British Retinitis Pigmentosa Society, the charity has since evolved into an internationally respected medical research charity and a nationwide organisation providing patient support and information with over 5,000 supporters. It remains grounded in its volunteer roots as it seeks to help patients live with RP and fund cutting edge research into the causes of and potential treatments for the disease. A team of staff based in Buckingham run the charity day-to-day and fundraise, administer the research grant programme and deliver services, with the support of many dedicated volunteers.
The charity’s main aims are:
• To stimulate and support high quality medical research with the aim of increasing scientific understanding of retinitis pigmentosa (and related conditions).
• Find treatments or cures for the condition that, when developed, are accessible to anyone affected.
• To signpost or provide good quality and universally-accessible information and support services for people affected.
If you want to find out more about RP Fighting Blindness, its work and the services it offers, please visit www.rpfightingblindness.org.uk or call head office on 01280 821334. Information packs, leaflets, DVDs and other materials are available to order completely free of charge. Posters and contact cards can also be supplied free, detailing patient services which have been developed specifically for use in optician’s practices, hospital ophthalmology departments and other healthcare environments.
Our RP Helpline number for those needing support and advice is 0845 123 2354